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Low expectations : attitudes on choice, care and community for people with dementia in care homes / QUINCE, Chris.
London, UK : Alzheimer's Society, 2013, xii, 71 p.

http://www.alzheimers.org.uk/site/scripts/download_info... (20-01-2014)
Format de fichier : Adobe Acrobat PDF
Droits d'auteur : Cette oeuvre est protégée par un droit d'auteur. Elle ne peut être reproduite qu'à des fins d'études privées ou de recherche et seulement si la source est mentionnée.

Lieux géographiques
: Royaume-Uni

Mots-clés principaux
:
Maladie d'Alzheimer
Personne atteinte
Démence
Centre d'hébergement et de soins de longue durée
Qualité des soins et services
Qualité de vie

Mots-clés secondaires : Dignité ; Continuité des soins ; Admission du patient ; Coordination des services ; Loisirs en institution

Résumé :

Analysis of recent studies suggests that in excess of 80% of residents living in care homes have dementia or significant memory problems. Providing care to people with dementia must be the primary concern and focus of the care home sector.
Across all those responding to our surveys, there were low expectations about the quality of life of people with dementia in care homes. More needs to be done to raise expectations about quality of life in care homes. Of UK adults responding to our YouGov poll, 70% said they would feel scared about moving into a care home in the future. Only 41% of family members responding to our survey thought the quality of life of the person with dementia was good, with over a quarter (28%) saying it was poor.
Views on the quality of care for people with dementia living in care homes were more positive, but the financial pressure on the care sector raises concerns about ongoing investment in training. Sector-led and government-supported improvement should be encouraged to ensure that standards improve. Of family members responding to our survey, 74% would recommend the care home to others, and 68% said the quality of care for the person with dementia was good. However, family members' views on opportunities for activities were less positive, with only 44% of family members saying opportunities were good. 88% of care home staff responding said the dignity and respect people with which dementia in their care home were treated was good.
The process of finding information on care homes can be challenging, and family members and people with dementia need to be supported with information to enable them to assess quality of homes. Nearly a quarter (24%) of family members responding to our survey said that they found it difficult to find information on care homes. Respondents most frequently sought information directly from care homes themselves.
A significant number of people with dementia had moved care home since first going into care. Emphasis needs to be placed on seeing admissions to care homes as steps in a continuum of care, rather than steps into residences of last resort. Nearly a third (32%) of family members responding reported that the person with dementia had moved since first going into care, the most common reason being an increase in needs.
Experiences of support from health services and engagement with the community were mixed. Family members and staff responding were positive about how homes worked with doctors and family members. However, views on opportunities for trips out of the home, and how the home worked with volunteers, were less positive.

Langue : Anglais
Doc n° : 30752
NumRec : 6614003
30752.pdf
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